Wednesday, October 16, 2013

three hundred and sixty five days.

Today marks three hundred and sixty five days since "before."
and obviously by "before" I mean "before cancer."
I knew today was coming, and I wasn't sure how I felt about it:
relieved?
anxious?
grateful?
frustrated?
I'm not really sure that I'm able to put an emotion on it.
I guess it would be better if I had some closure on the whole thing
if I were cured or in remission
but nothing like that will be known until after the myriad of testing (and the return of that horrible diet) I go through this upcoming January.

Still, for some reason, this date of October 16 is really a sticking point for me.
Because on Tuesday October 16 2012, while standing in the home decor section of Gordmans with my mom
watching Ingrid carry around a stuffed big bird in a plastic baby carrier,
I received a phone call from my surgeon.
I don't need a photo to remember this moment, but I have one
because let's face it, I'm kind of a fan of random snapshots.
So just after I took this picture
while my mom was deciding between some photo frames,
my phone rang.
I almost didn't answer, but I thought they were calling to reschedule my post-op appointment
to remove stitches from the lump they removed in my neck.
This surgery was supposed to be really benign:
my ob/gyn had found a lump at my post-partum checkup when Ingrid was 6 weeks old.
The specialist didn't think it was anything concerning but they biopsied it anyway.
That biopsy came back negative, but at my check-up eight(ish) months later,
the lump had grown.
I remember them telling me "whether it is benign or not, we need to take it out before it starts to bother your swallowing or become noticeable on your tiny neck."
It was decided that surgery was the best option, though I was really concerned with being away from Ingrid as I was still nursing - I chose a surgery date as far out as possible (4-6 weeks, I think) and started planning the logistics: weaning. someone to stay with the kiddos. someone to be here to lift the kiddos while I was on restrictions post-operatively. someone to cook food.

FYI: "Someone" = my mom. She rocks.

So otherwise that was a quick surgery - one night in the hospital and I was home with some lifting restrictions and some ugly neck stitches. It wasn't too sore or cumbersome. I might not even need to take thyroid replacement as something like 80% of people can function with just half of their normal thyroid! My mom was in town until I could pick up my small children and put them into their car seats. This was the day I was to go into the office and have those stitches removed, and after that my mom was heading home. But instead, the phone rang in Gordman's and it went something like this:

"Hello? Nicole? This is Dr. Specialist-person.. how are you this morning?"
"Uh.. I'm guessing I'm not doing that great if you are calling me personally." - Me
and so on and so forth...

The gist of it was that my in-surgery biopsies had come back cancerous and I needed to have another surgery tomorrow (!!) to completely remove the thyroid and any affected nodes. Tomorrow!?! It had taken 4-6 weeks to prepare for that first surgery and we now had less than 24 hours. The kids? The extended lifting restriction? I didn't cry, there was too much to do and furthermore I was in public. In a retail store. I'm pretty sure that when someone imagines how it would go down that someone tells them they have cancer, they are sitting in a doctor's office across the desk from someone in a white coat. I might have been staring at a 40% off sign in a department store. I'm also pretty sure my mom wanted to just go back to my house immediately, but I figured since we were out, we might as well stop at the grocery store and run a few errands since I had cancer and would be occupied for awhile with that. Even writing that, I realize how weird it sounds, but it was more of a practicality thing than anything else. We needed organic whole milk, cheddar bunnies, and apparently, a better thyroid.

And Issac.. I called him: no answer. I called again: no answer. And again. Plans had to be made and it is the world's strangest feeling to be talking with someone (anyone) else about your cancer before your spouse even knows that it exists. People who knew: my neighbors. Amelia's preschool teacher. My friend Jess. The checkout lady at JoAnn fabrics. He had no idea for the better part of the day. Rough day. Wow, I sure hope 2013 has something better to deliver on this October 16th day than last year :)

Late that night.. and pretty much the entire next day were the lowest points in this entire journey. I don't chide myself for my lack of strength or positive thinking. I'm the first to admit that I was a hot mess, and I couldn't find a positive thought anywhere in the entire mess of that day but I am happy to report that everything since then has been an upswing. My second surgery went well. My doctors rocked. The food didn't suck. I didn't sleep a wink but watched an entire season of New Girl in the hospital and even laughed a little bit. I came home, and started on the journey that many of you have been following since a few days after that when I shared the news.

So why write about it now? The other day, while reflecting on this approaching milestone-of-sorts, I realized that I never really talked about what happened that first day. I think I had always meant to. Somehow as time passes, I am more willing to share more of the emotion.. I surely remember these details like it happened five minutes ago, but sharing raw details can be harder to communicate than facts or cheeky photos of my goofy kids.

P.S. I haven't been back to Gordmans. I don't think it would be weird, but who knows. I never frequented it much to begin with, so it hasn't been an active avoidance. I do find it different to be at my sister's apartment sometimes. I spent so much time there alone while on quarantine that the last time I was there with my parents, the girls and my sister, it almost felt uncomfortable to have other people in that space I occupied alone for ten straight days!

3 comments:

  1. Nicole you are such a strong woman, your family is lucky to have you. We all are. XOXO

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  2. thank you for reminding me my problems are literally nothing. you were in our prayers often when your journey began, but I feel like you should be on the prayer list more often. you are truly amazing, friend!

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  3. Maria and Courtney took the words out of my mouth. I can't believe/imagine everything you've been through. And it's amazing how much it puts things in perspective. You're truly inspirational. ... and I wish I could hug you right now!

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